Serbia
National Organization for Rare Diseases of Serbia
Đušina 10, lokal 6, Belgrade,
Phone: 0800 333 103
E-mail:office@norbs.rs
Association of Citizens for the Fight against Rare Diseases in Children “Život”
Database of rare diseases https://retkebolesti.com
Email:info@retkebolesti.com
Address: Narodnog fronta 73b, Novi Sad
Phone: +381 62 585 118
Association of parents of children suffering from malignant and other rare diseases “Zvoncica” Belgrade
phone: +381 11 2600 444
email:udruzenjezvoncica@gmail.com
Association of Lymphoma Patients
email:lipaserbia@gmail.com
phone: 060 022 2317
SMA Serbia – Spinal muscular atrophy
https://smasrbija.rs
email:smasrbija@sma.org.rs
Debra Serbia – Association for epidermolysis bullosa
Email:office@debra.org.rs,debra.srbija@gmail.com
Phone:064 3086620
Association of patients with phenylketonuria – PKU Serbia
phone: 808 123 4567
Association for help and support for people suffering from Friedreich’s ataxia
https://sites.google.com/site/fridrajhovaataksija/home
Association for help and support for people with cystic fibrosis of Serbia
email:cfsrbija@gmail.com
Belgrade
Association of citizens to help people suffering from Gaucher’s disease – UGOŠ
Address: Murska 7, Beograd
email: gose.srbija@gmail.com
phone: 063/83-37-695 (Biljana Jovanović, president)
Association of dystrophists of Serbia
Address: Dimitrija Tucovića 23, Beograd
Tel:011/24-55-184,011/24-14-328
E-mail: savezdistroficara@mts.rs,savez@distrofija.rs
POsPID – Support for people with primary immunodeficiencies
Address: Otona Župančića 12/38, Beograd
phone: + 381 11 2602030
Association for the treatment of patients with Fabry disease
Address: Ivanke Muačević 5 A, 11000 Belgrade,
Association of Multiple Myeloma Patients of Serbia
https://mijelomsrbija.wixsite.com/mijelom/patient-resources
Phone: 062/18-39-200
National association of people with growth hormone deficiency and short stature – HORAST
https://sites.google.com/site/horastorg/home
email:horastorg@gmail.com
Phone: +381 (63) 8330553
President: Olga Davidović
Association of citizens to help myelofibrosis sufferers
Address: Cetinjska 15, Zemun, Belgrade
Kotur Sanja: 063 239 346
Association of Citizens for Helping Patients with Dravet Syndrome Serbia
Address: Tome Roksandića 8,Sombor
Phone: 061 1080896
e-mail: irenachifor@gmail.com
Association for Motor Neuron Diseases of Serbia
Clinic for Neurology, KCS
Dr Subotića 6, 11000 Belgrade
https://als.dgt.rs/udruzenje-za-bolesti-motoneurona-srbije/
Association for help and support for people with Morquio syndrome mucopolysaccharidosis of Serbia
https://www.mpsserbia.rs/2014-2/
Address: Vukasovićeva 50, Beograd
email: http://mps.srbija@gmail.com/
Association of Patients with Rare Tumors UPRT
Address:PAUNOVA 41/55, 11040 BEOGRAD
Phone:011 3672 383, 063 7000 469
EMAIL:OFFICE@UPRT.ORG.RS
22q ex YU- Mikrodelecija22q11.2
email:22qexyu@gmail.com
Pulmonary hypertension of Serbia – PHA Serbia
Address: Bulevar Crvene armije 11b/13, Novi Beograd
President: Danijela Pešić
email:danijela@pesic.rsofficephserbia@gmail.com
Movement of the little people of Serbia
https://pokretmalihljudisrbije.org.rs/
Address: Kralja Petra I25, Sombor
email:lps@gmail.com
https://www.facebook.com/littlepeopleofserbia/
Citizens’ Association for the Fight against Ovarian Cancer “Progovori”
email:office@progovori.rs
Hrabriša Association – Association that brings together families with children with neurometabolic diseases.
Address: Radnička 7, Novi Sad
President: Ivana Badnjarević
Tel: +381642616500
Email:udruzenje.hrabrisa@gmail.com
Duchenne muscular dystrophy Serbia
Address: Nestora Džilitova 24, Bečej
Responsible person: Goran Vasović
email:dmdsrbija@gmail.com
Phone: +381 63 560 724
WILSON Charitable Association
Address: Pariske komune 40, Novi Sad
email: office@wilson.org.rs
President: Saša Košutić
Williams Syndrome Association
https://www.vilijamsovsindrom.com/
Address: Mičurinova 54/10, Novi Sad
email:udruzenjevilijams@gmail.com
Phone: +381 63 526595
Association PNH Serbia
Address: Serdara Janka Vukotića 4, Belgrade (Rakovica)
GLUT1 Serbia
email:glut1srbija@gmail.com
Association for the support of children with anorectal anomalies JEDAN in 5000 Balkans
Address: Bagdalski Venac 4A, 37000 Kruševac
Email: jedanu5000balkan@gmail.com
Representative: Aleksandra Milutinović
Association of patients suffering from pulmonary fibrosis – SUPF
email:udruzenjepf@gmail.com
BROMOLOGOS – citizens’ association for improving the quality of life of people with phenylketonuria
Address: Mileve Marić 40, Novi Sad
www.fenilketonurija.com
https://www.facebook.com/Bromologos/
Association for the fight against rare diseases Kosovo
